shifts

before the sun even thought about rising, I spent time this morning reflecting on how HSCT has created such opportunity in my life and while I hope not to jinx anything, it seems that slight improvements are already occurring… I would be remiss if I didn’t mention that my own tendency to do everything I…

comfort

in remembering that pain is temporary, mindfulness is practice, and that drugs are poison. in tasting chicken Pho as my first food other than graham crackers and applesauce in the past 12 hours. in knowing that my daughter is enjoying opportunity to thrive in school, with both sets of grandparents, and her friends while we’re…

relieved

Thanks to all your good energy and the amazing care at Prentice, the past 24 hours were endured quite well. Waiting on the last of my meds to drip through my veins, lose the foley, shower, and discharge around 3. We head back to the hotel to rest and begin neopogen to help my bone…

ingrained

I am so grateful for the generosity of friends and strangers – if I have yet to thank you personally, please know I hope to soon, and very much appreciate your support! Yesterday morning, WCPO in Cincinnati published my story online and on air, lifting up my efforts to promote my story andĀ advocate for my…

gratitude

Today I found myself overwhelmed with gratitude… for my family and friends, especially my daughter, mother, husband, sisters, and neighbors… for the school counselors at my daughter’s school who are making time to support her through this experience and found time to share an update with me this morning… for Lucy May and Kathrine Nero…

chances

Sometimes I catch myself so caught up in the present moment that I realize I haven’t taken time to look ahead, or to reflect on how far I’ve come. And then I look at the calendar and realize that one month from today I will receive my first dose of chemo to begin the reboot…

resources

thought I would pass along links to a few interesting articles I encountered this week: research into whether high-doses of Biotin (Vitamin H) can help strengthen myelin (I started taking 6,000 IU of Biotin daily about three months ago…perhaps I need more?) research about genetic susceptibility to developing MS (as a mother this potential certainly…

perfect timing

I’m writing to extend infinite thanks for the generous support (financial and emotional) offered by family, friends, and strangers to help make the HSCT procedure a reality for me. With your generous donations and significant financial sacrifices, I just booked dates for transplant today and I am beyond grateful. elated. humbled. thrilled. ecstatic. One year…

seeking approval

amazing how you can strive to embrace non-judgment, awareness, and simplicity, yet develop quite the saga in just six months… despite being approved to proceed with the hematopoietic stem cell transplant (HSCT) on December 1, 2016, I have been anticipating the insurer holding true ever since. one week after approval was offered, the insurer decided…

intro to halt my MS

Thank you for taking time to learn more about my journey and my hopes for the future. You might have seen parts of my story published by WCPO or The Northerner, or know more of my day-to-day struggles as I have the pleasure of seeing you often. Here, I hope to offer a platform to…