“People have a hard time letting go of their suffering. Out of a fear of the unknown, they prefer suffering that is familiar.” Thich Nhat Hanh
Although this quote bears infinite wisdom, I am eager to let go of suffering. Since first experiencing the unexplained pains (numbness, shocking pains throughout my back, neck and shoulders) and illness in my late teens (which turned out to be lyme disease that triggered the multiple sclerosis to evolve), I have learned to embrace the unknown in hopes to find answers, create opportunities, and pursue possibilities. I have learned to be an advocate for myself and my health, and also to be an advocate for others, especially those who live on the margin or feel as though they have no voice.
My intention for this blog is to share my experiences with hematopoietic stem cell transplant (HSCT); offer clarification (e.g. the stem cells I am seeking are my own – they will be harvested from my blood and returned to me after intense chemo obliterates my existing immune system); connect people on similar journeys with resources and information; and hopefully, help others build capacity to advocate for themselves.
While I build my new immune system, I intend to stay productive, positive, healthy, and focused on strengthening my body and mind…