though most clinics are on hold due to COVID (as of Jan. 2021), the “Best Available Therapy vs. Autologous Stem Cell Transplant (BEAT-MS)” randomized trial is listed on clinicaltrials.org as recruiting at 20 different locations in the United States and 1 in the UK (the BEAT-MS trial measures efficacy of the myeloablative BEAM protocol – please note this blog contains information related to the non-myeloablative protocol endured by the author) … word on the street is that some clinics are willing to treat ‘off trial’ so be sure to contact individual locations (find contact info for clinics worldwide at hsctwarriors.org/hsct-locations) for the most accurate information
although Dr. Burt and his team closed their “Maximizing Outcome of Multiple Sclerosis Transplantation (MOST) trial, they have published a website to feature his research and presentation efforts, at https://astemcelljourney.com/about/drrichardburt/
one of the most helpful publications explaining the efficacy of HSCT can be found in the Journal of the American Medical Association (JAMA): Effect of Nonmyeloablative Hematopoietic Stem Cell Transplantation vs Continued Disease-Modifying Therapy on Disease Progression in Patients with Relapsing Remitting Multiple Sclerosis,
to read more about haematopoietic stem cell transplant (HSCT), including the risks, the benefits, and success stories visit: http://www.stemcellresearchfacts.org/dr-richard-burt/
or, watch to hear about it from Dr. Burt: https://youtu.be/yi49gJkuRlQ
or, read this article published after the 2015 JAMA publication hit: http://www.healthline.com/health-news/stem-cell-transplants-first-ms-treatment-reverses-disability-012215#6
to hear details about various journeys with HSCT, including stories about HSCT in Chicago, Mexico, Singapore, Australia, the UK, Russia, and more, subscribe to the HSCT Warriors Podcast
to learn more about HSCT hopefuls or to connect with HSCT veterans from around the world, connect with the Chicago group on FaceBook, search: “Chicago HSCT Stem Cell Transplant Study – Official Patient Run – Dr. Burt.” Similar to the various other HSCT related Facebook groups, this is a veteran-run group and you must request to be added by the moderators.
to get Lyme Literate (e.g. find resources and information about Lyme Disease and Tick Borne Illness), visit: http://www.ilads.org
to find a Lyme Literate doctor, visit: http://ilads.org/ilads_media/physician-referral/
if you think you might have Lyme Disease or a Tick Borne Illness, consider visiting the Lyme and Tick-Borne Diseases Center at Columbia University Medical Center: http://columbia-lyme.org
if your CDC test reads negative for Lyme, but you have symptoms and no diagnosis, consider: http://www.igenex.com
to learn more about active clinical trials endorsed by the FDA, visit: https://clinicaltrials.gov
if you have questions about my recommendations, or experience with these resources, please don’t hesitate to reach out!